Real Stories from People Living with Fragile X Syndrome | CDC - fragile x syndrome adult

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Young Fragile X Adults, Parents Identify Major Concerns in Study fragile x syndrome adult


This information is critical for understanding the needs of adults with fragile X syndrome and tailoring services and public policy to enhance their quality of life.

While the life span of people with fragile X syndrome (FXS) is typically normal, there is very little information in the medical literature about adults with FXS.

Young adults with fragile X syndrome (FXS) and their parents have identified several areas of major concern, including those related to.

These individuals are at risk for having children or grandchildren with fragile X syndrome, however, and also at risk for two adult onset disorders, fragile X.